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Raphael’s Story

By August 31, 2017 September 26th, 2019 No Comments

Raphael was diagnosed with Spina Bifida Myelomeningocele at 18 weeks in-utero. He was delivered prematurely because of hydrocephalus, and he then underwent several surgeries to stabilize his condition. After weeks in the Children’s Hospital of Philadelphia, he came home to start his life with his family.

Spina Bifida (SB) is a disabling birth defect that, in pronounced cases like Raphael’s, is always accompanied by significant medical assistance throughout the individual’s life.

Since he initially came home, Raphael has undergone several surgeries and countless doctor visits. He also has almost daily therapy sessions, and several medical assistive devices. He has come so far and undergone far more than a small child should. Despite it all, he is brave, adventurous, and filled with happiness. He is a joy and inspiration.

One of the side effects of SB is clubfeet. Raphael has had a series of leg castings and one surgery to help correct this, but he has had an ongoing battle to keep his feet positioned correctly. Doctor Dobbs in St Louis, Missouri is able to help correct his feet. We are grateful for any flight assistance possible to make this happen for him. Thank you, Miracle Flights. ~ Raphael’s parents,Florida