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Cystic Fibrosis

Cystic Fibrosis Education and Resources

When you/your child is coping with the lifelong challenges of cystic fibrosis, you need all the support you can get. The following resources will help you understand doctor-speak and link you to additional health information.

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Cystic Fibrosis Organization

Sometimes it’s hard to tell which information on the Internet is actually helpful. We trust the following sites to provide useful information to parents, kids, teens and adults seeking more information on cystic fibrosis:

Boomer Esiason Foundation

foundation information, fund raising, events, and newsletter

Happy Heartfamilies

Practical parenting tools for children with CF

Cystic Fibrosis Foundation

Wealth of information on CF and CF research. Standards of care are listed on this website.

Cystic Fibrosis Worldwide

Newsletters, links, updates on CF. International platform for the exchange of information.

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International CF Adult Organization

For adults with CF throughout the world

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Resources and knowledge on CF

Respiratorycare Medscape

News and information on pulmonary issues

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My Cystic Fibrosis

Helpful information on CF

Cystic Fibrosis Research Inc

Help to fund and sponsor CF research. Provide educational programs and personal support

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General information on CF and children’s health

National Library of Medicine

Articles on CF research and national medical news

Medline Plus

Articles on CF research and national medical news


CF Chef high calorie recipes designed for patients with CF

Cystic Fibrosis Support Groups

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Reach for the Stars

Provides resources, knowledge, and support to those with CF


Information and support. Free email service dedicated to the exchange of information and support on CF.


MN foundation for chronically ill patients and families.

Cystic Fibrosis

“Support. Education. Hope.” For those with CF

Star Bright Foundation

Provides education, family activities, and entertainment to seriously ill children

Breathing Room

“The art of living with CF”

DFW CF Families Facebook Page

Connecting DFW CF families on facebook

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