Blog

Mom and Son who share the same Rare Disease

By August 31, 2017 September 26th, 2019 No Comments

Jaxon was just 3 years old when he was diagnosed with a rare disease called Relapsing Polychondritis. This disease affects places where there is cartilage in the body and organs. For Jaxson, this means painful limbs, joints, and headaches. Some days he can run and play, and life seems normal – other days, he wakes up from pain, it is too painful for him to walk.

In 2016, his mother, Amanda was not feeling well. She recognized the symptoms her son had experienced, and thought perhaps, this might be the same for her.

“It took going to the National Institutes of Health (NIH) in Bethesda, Maryland to find my diagnosis of Relapsing Polychondritis,” said Amanda. “My son and I both struggle with doctors that do not understand this disease.”

“Thank you, Miracle Flights, for helping us get to the doctors that understand and are fighting to figure out this disease! As a mother to 4 and struggling with even trying to work, there is no way I could get to the doctors I need without Miracle Flights! Thank you!” ~