When you/your child is coping with the lifelong challenges of cystic fibrosis, you need all the support you can get. The following resources will help you understand doctor-speak and link you to additional health information.
Need help getting to your Cystic Fibrosis treatment?
Sometimes it’s hard to tell which information on the Internet is actually helpful. We trust the following sites to provide useful information to parents, kids, teens and adults seeking more information on cystic fibrosis:
Boomer Esiason Foundation
foundation information, fund raising, events, and newsletter
Happy Heartfamilies
Practical parenting tools for children with CF
Cystic Fibrosis Foundation
Wealth of information on CF and CF research. Standards of care are listed on this website.
Cystic Fibrosis Worldwide
Newsletters, links, updates on CF. International platform for the exchange of information.
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International CF Adult Organization
For adults with CF throughout the world
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Cfliving
Resources and knowledge on CF
Respiratorycare Medscape
News and information on pulmonary issues
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My Cystic Fibrosis
Helpful information on CF
Cystic Fibrosis Research Inc
Help to fund and sponsor CF research. Provide educational programs and personal support
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Kidshealth
General information on CF and children’s health
National Library of Medicine
Articles on CF research and national medical news
Medline Plus
Articles on CF research and national medical news
Chef4cf
CF Chef high calorie recipes designed for patients with CF
Cystic Fibrosis Support Groups
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Reach for the Stars
Provides resources, knowledge, and support to those with CF
Cystic-L
Information and support. Free email service dedicated to the exchange of information and support on CF.
Pacer
MN foundation for chronically ill patients and families.
Cystic Fibrosis
“Support. Education. Hope.” For those with CF
Star Bright Foundation
Provides education, family activities, and entertainment to seriously ill children
