Sometimes it’s hard to tell which information on the Internet is actually helpful. We trust the following sites to provide useful information to parents, kids, teens and adults seeking more information on cystic fibrosis:

• • www.esiason.org
    Boomer Esiason Foundation: foundation information, fund raising, events, and newsletter
  • www.happyheartfamilies.com
    Practical parenting tools for children with CF
  • www.cff.org
    Cystic Fibrosis Foundation: Wealth of information on CF and CF research. Standards of care are listed on this website.
  • www.cfww.org
    Cystic Fibrosis Worldwide: Newsletters, links, updates on CF. International platform for the exchange of information.
  • www.iacfa.org
    International CF Adult Organization: For adults with CF throughout the world
  • www.cfliving.com
    Resources and knowledge on CF
  • www.respiratorycare.medscape.com
    News and information on pulmonary issues
  • www.mycysticfibrosis.com
    My Cystic Fibrosis: Helpful information on CF
  • www.cfri.org
    Cystic Fibrosis Research Inc: Help to fund and sponsor CF research. Provide educational programs and personal support
  • www.kidshealth.org
    General information on CF and children’s health
  • https://www.ncbi.nlm.nih.gov
    National Library of Medicine: Articles on CF research and national medical news
  • https://medlineplus.gov/cysticfibrosis.html
    Medline Plus: Articles on CF research and national medical news
  • https://www.chef4cf.com/
    CF Chef high calorie recipes designed for patients with CF

• • • www.r4stars.org
      Reach for the Stars: Provides resources, knowledge, and support to those with CF
    • www.cystic-L.org
      Cystic-L: Information and support. Free email service dedicated to the exchange of information and support on CF.
    • www.pacer.org/
      Pacer: MN foundation for chronically ill patients and families.
    • www.cysticfibrosis.com
      “Support. Education. Hope.” For those with CF
    • www.starbright.org
      Star Bright Foundation: Provides education, family activities, and entertainment to seriously ill children
    • www.theBreathingRoom.org
      Breathing Room: “The art of living with CF”
    • DFW CF Families Facebook Page
      Connecting DFW CF families on facebook