CYSTIC FIBROSIS ORGANIZATIONS
Sometimes it’s hard to tell which information on the Internet is actually helpful. We trust the following sites to provide useful information to parents, kids, teens and adults seeking more information on cystic fibrosis:
Boomer Esiason Foundation: foundation information, fund raising, events, and newsletter
Practical parenting tools for children with CF
Cystic Fibrosis Foundation: Wealth of information on CF and CF research. Standards of care are listed on this website.
Cystic Fibrosis Worldwide: Newsletters, links, updates on CF. International platform for the exchange of information.
International CF Adult Organization: For adults with CF throughout the world
Resources and knowledge on CF
News and information on pulmonary issues
My Cystic Fibrosis: Helpful information on CF
Cystic Fibrosis Research Inc: Help to fund and sponsor CF research. Provide educational programs and personal support
General information on CF and children’s health
National Library of Medicine: Articles on CF research and national medical news
Medline Plus: Articles on CF research and national medical news
CF Chef high calorie recipes designed for patients with CF
Reach for the Stars: Provides resources, knowledge, and support to those with CF
Cystic-L: Information and support. Free email service dedicated to the exchange of information and support on CF.
Pacer: MN foundation for chronically ill patients and families.
“Support. Education. Hope.” For those with CF
Star Bright Foundation: Provides education, family activities, and entertainment to seriously ill children
Breathing Room: “The art of living with CF”
- DFW CF Families Facebook Page
Connecting DFW CF families on facebook