Donate Now Request a Flight Miracle flights final facebook twitter instagram-14-32 youtube-9-32 linkedin-4-32

Our Children's Stories

By Miracle Flights, Aug 31 2017 08:46PM

Jaxon was just 3 years old when he was diagnosed with a rare disease called Relapsing Polychondritis. This disease affects places where there is cartilage in the body and organs. For Jaxson, this means painful limbs, joints, and headaches. Some days he can run and play, and life seems normal - other days, he wakes up from pain, it is too painful for him to walk.

In 2016, his mother, Amanda was not feeling well. She recognized the symptoms her son had experienced, and thought perhaps, this might be the same for her.

"It took going to the National Institutes of Health (NIH) in Bethesda, Maryland to find my diagnosis of Relapsing Polychondritis," said Amanda. "My son and I both struggle with doctors that do not understand this disease."

"Thank you, Miracle Flights, for helping us get to the doctors that understand and are fighting to figure out this disease! As a mother to 4 and struggling with even trying to work, there is no way I could get to the doctors I need without Miracle Flights! Thank you!" ~ Amanda.

By Miracle Flights, Aug 31 2017 08:44PM

We adopted Steven from China just over three weeks ago. We knew he was sick, but we had no idea things would go the way they did. He is 3 years old and was born with Anal Atresia. He underwent six or seven surgeries while in China. Many of these surgeries were to save his life following bowel perforations and going into septic shock. He is a true miracle!

Once home, Steven spent three more days in our local children's hospital after he began vomiting stool. They treated him conservatively, knowing we wanted his surgery to be in Boston with the specialist, Dr. Dickie. They were going to attempt to see if he had control of his bowels before they did a reversal of his colostomy, but now there is no time because he is too sick and has multiple obstructions. He must have his stomach irrigated twice per day, and is limited in what he eats in order to keep him stable until we get him to Boston. The plan by his doctor in Boston is to open Steven’s belly with an exploratory laparotomy to see what he has left and what had been done in China. They will then take down his colostomy and put in an ileostomy to give his bowels a true rest. They will remove the port in his chest that is no longer working, and try to remove adhesions throughout his stomach from multiple surgeries.

Steven has been through so much in less than a month of being with us. He is a miracle, and we know that God's timing is perfect. ~ Steven’s parents, South Carolina

By Miracle Flights, Aug 31 2017 08:44PM

Raphael was diagnosed with Spina Bifida Myelomeningocele at 18 weeks in-utero. He was delivered prematurely because of hydrocephalus, and he then underwent several surgeries to stabilize his condition. After weeks in the Children’s Hospital of Philadelphia, he came home to start his life with his family.

Spina Bifida (SB) is a disabling birth defect that, in pronounced cases like Raphael’s, is always accompanied by significant medical assistance throughout the individual’s life.

Since he initially came home, Raphael has undergone several surgeries and countless doctor visits. He also has almost daily therapy sessions, and several medical assistive devices. He has come so far and undergone far more than a small child should. Despite it all, he is brave, adventurous, and filled with happiness. He is a joy and inspiration.

One of the side effects of SB is clubfeet. Raphael has had a series of leg castings and one surgery to help correct this, but he has had an ongoing battle to keep his feet positioned correctly. Doctor Dobbs in St Louis, Missouri is able to help correct his feet. We are grateful for any flight assistance possible to make this happen for him. Thank you, Miracle Flights. ~ Raphael’s parents,Florida

RSS Feed