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Our Children's Stories

By Miracle Flights, Sep 18 2017 11:33PM

UFC®, the world’s leading mixed martial arts organization, today announced a new national charitable partnership with Miracle Flights, the nation’s leading nonprofit health and welfare flight organization. Established in 1985, Miracle Flights provides free commercial air transportation to critically ill children in need of medical care far from home. “UFC athletes are some of the toughest in the world, but what happens inside the Octagon pales in comparison to the obstacles these children face on a daily basis,” UFC Senior Executive Vice President and Chief Operating Officer Ike Lawrence Epstein said. “We are proud to partner with Miracle Flights and support its mission to help children receive the life-changing medical care they need.” This partnership is supported through UFC’s ‘We Are All Fighters’ initiative, which celebrates the fighter in all of us and is a symbol of how everyone fights every day to overcome challenges large and small. Now in its 32nd year, Miracle Flights has provided more than 110,000 free medical flights to help children with rare and life-threatening conditions gain access to specialized, out-of-state medical care. UFC’s support of Miracle Flights includes a joint PSA featuring UFC Hall of Famer Forrest Griffin and 11-year old Levi Krystosek. Levi, a native of Ocean Springs, Mississippi, suffers from Jansen’s Metaphyseal Chondrodysplasia, an exceptionally rare form of dwarfism with only 24 known cases worldwide. Since initially contacting Miracle Flights, Levi has been flown to see medical specialists in both Chicago, Illinois, and Wilmington, Delaware, 16 times, which included the nonprofit’s historic 100,000th flight in 2016. “Like many of the children we fly, Levi faces incredible odds but never gives up. With his endless courage and determination, Levi is a true fighter,” said Mark E. Brown, CEO of Miracle Flights. “To have UFC lend its support to help Levi and all of ‘our kids’ who are fighting for their lives is a tremendous honor.” Please click the following links to view the short-form feature of this partnership. For more information, please visit

By Miracle Flights, Sep 5 2017 10:06PM

Little Miss Addisyn Addisyn is now almost 10 years old. She has Sturge-Weber Syndrome.

According to, (SWS) is a neurological disorder marked by a distinctive port-wine stain on the forehead, scalp, or around the eye. This stain is a birthmark caused by an overabundance of capillaries near the surface of the skin. Blood vessels on the same side of the brain as the stain may also be affected. A large number of people with SWS experience seizures or convulsions. Other complications may include increased pressure in the eye, developmental delays, and weakness on one side of the body.

For Addisyn, this means she suffers from seizures, glaucoma, and global developmental delays. She is currently in a clinical trial for a new seizure drug on the East Coast - Addisyn and her family live in California.

Miracle Flights has provided flight for Addisyn to fly to Maryland, Florida, California, and Colorado for treatment 31 times so far in her young life.

"Addisyn is doing the best she ever has, and we are enjoying seeing her thrive in the ways she is," says mom. "She continues to struggle daily with her condition, but we always make the best of it."

"Our family is incredibly grateful for Miracle Flights, and that they continue to provide flights for Addisyn to receive the best treatment that is available."

Watch her video here.

By Miracle Flights, Aug 31 2017 08:46PM

Jaxon was just 3 years old when he was diagnosed with a rare disease called Relapsing Polychondritis. This disease affects places where there is cartilage in the body and organs. For Jaxson, this means painful limbs, joints, and headaches. Some days he can run and play, and life seems normal - other days, he wakes up from pain, it is too painful for him to walk.

In 2016, his mother, Amanda was not feeling well. She recognized the symptoms her son had experienced, and thought perhaps, this might be the same for her.

"It took going to the National Institutes of Health (NIH) in Bethesda, Maryland to find my diagnosis of Relapsing Polychondritis," said Amanda. "My son and I both struggle with doctors that do not understand this disease."

"Thank you, Miracle Flights, for helping us get to the doctors that understand and are fighting to figure out this disease! As a mother to 4 and struggling with even trying to work, there is no way I could get to the doctors I need without Miracle Flights! Thank you!" ~ Amanda.

By Miracle Flights, Aug 31 2017 08:44PM

We adopted Steven from China just over three weeks ago. We knew he was sick, but we had no idea things would go the way they did. He is 3 years old and was born with Anal Atresia. He underwent six or seven surgeries while in China. Many of these surgeries were to save his life following bowel perforations and going into septic shock. He is a true miracle!

Once home, Steven spent three more days in our local children's hospital after he began vomiting stool. They treated him conservatively, knowing we wanted his surgery to be in Boston with the specialist, Dr. Dickie. They were going to attempt to see if he had control of his bowels before they did a reversal of his colostomy, but now there is no time because he is too sick and has multiple obstructions. He must have his stomach irrigated twice per day, and is limited in what he eats in order to keep him stable until we get him to Boston. The plan by his doctor in Boston is to open Steven’s belly with an exploratory laparotomy to see what he has left and what had been done in China. They will then take down his colostomy and put in an ileostomy to give his bowels a true rest. They will remove the port in his chest that is no longer working, and try to remove adhesions throughout his stomach from multiple surgeries.

Steven has been through so much in less than a month of being with us. He is a miracle, and we know that God's timing is perfect. ~ Steven’s parents, South Carolina

By Miracle Flights, Aug 31 2017 08:44PM

Raphael was diagnosed with Spina Bifida Myelomeningocele at 18 weeks in-utero. He was delivered prematurely because of hydrocephalus, and he then underwent several surgeries to stabilize his condition. After weeks in the Children’s Hospital of Philadelphia, he came home to start his life with his family.

Spina Bifida (SB) is a disabling birth defect that, in pronounced cases like Raphael’s, is always accompanied by significant medical assistance throughout the individual’s life.

Since he initially came home, Raphael has undergone several surgeries and countless doctor visits. He also has almost daily therapy sessions, and several medical assistive devices. He has come so far and undergone far more than a small child should. Despite it all, he is brave, adventurous, and filled with happiness. He is a joy and inspiration.

One of the side effects of SB is clubfeet. Raphael has had a series of leg castings and one surgery to help correct this, but he has had an ongoing battle to keep his feet positioned correctly. Doctor Dobbs in St Louis, Missouri is able to help correct his feet. We are grateful for any flight assistance possible to make this happen for him. Thank you, Miracle Flights. ~ Raphael’s parents,Florida

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