Thousands of children have been saved, but we still have miles to go.
Having coordinated over 100,000 flights, Miracle Flights is dedicated to improving the lives of children everywhere. Below is just a snapshot of the many lives we've touched and futures we've brightened thanks to the support of our miracle makers.
Raphael was diagnosed with Spina Bifida Myelomeningocele at 18 weeks in-utero. He was delivered prematurely because of hydrocephalus, and he then underwent several surgeries to stabilize his condition. After weeks in the Children’s Hospital of Philadelphia, he came home to start his life with his family.
Spina Bifida (SB) is a disabling birth defect that, in pronounced cases like Raphael’s, is always accompanied by significant medical assistance throughout the individual’s life.
Since he initially came home, Raphael has undergone several surgeries and countless doctor visits. He also has almost daily therapy sessions, and several medical assistive devices. He has come so far and undergone far more than a small child should. Despite it all, he is brave, adventurous, and filled with happiness. He is a joy and inspiration.
One of the side effects of SB is clubfeet. Raphael has had a series of leg castings and one surgery to help correct this, but he has had an ongoing battle to keep his feet positioned correctly. Doctor Dobbs in St Louis, Missouri is able to help correct his feet. We are grateful for any flight assistance possible to make this happen for him. Thank you, Miracle Flights.
My daughter, Aniyah, has severe Crohn’s Disease, and she has recently been diagnosed with Eosinophilic Esophagitis. The Crohn’s Disease is now attacking her upper GI track. It is highly important for Aniyah to get to New York to see Dr. Dubinsky and his team, in order to receive additional treatment.
Currently Aniyah is receiving 85% of her meals through her G-tube because eating by mouth is difficult for her. She still receives her Entyvio infusions every 8 weeks and her Port-A-Cath flushes every 4 weeks. She has to wear pull-ups because she has no control over her bladder, as well as a full-time nurse at school to assist with her medical needs. My son and I provide her care at home in the evenings.
Without the assistance of Miracle Flights, I would not be able to get Aniyah to New York to see Dr. Dubinsky. He is her last hope to try and get her condition under control, and give her a better quality of life.
Miles just turned 3 months old. He does not have much of a story as of yet, but here is a little bit about him.
He was diagnosed with Cystic Fibrosis at 5 weeks old. He lives in Fairbanks, Alaska with his mom, dad, older brother, and sister. So far, he is as healthy as can be and doing great! He has started to smile and laugh, and is quite chatty. He loves to be with the family and is very social.
Because of his condition and where we live, he has to travel to Anchorage each month for his first year to visit a special team of care providers.
Thank you so much, Miracle Flights, for your help with the flights. You have no idea the tremendous weight this takes off my shoulders.
We adopted Steven from China just over three weeks ago. We knew he was sick, but we had no idea things would go the way they did. He is 3 years old and was born with Anal Atresia. He underwent six or seven surgeries while in China. Many of these surgeries were to save his life following bowel perforations and going into septic shock. He is a true miracle!
Once home, Steven spent three more days in our local children's hospital after he began vomiting stool. They treated him conservatively, knowing we wanted his surgery to be in Boston with the specialist, Dr. Dickie. They were going to attempt to see if he had control of his bowels before they did a reversal of his colostomy, but now there is no time because he is too sick and has multiple obstructions. He must have his stomach irrigated twice per day, and is limited in what he eats in order to keep him stable until we get him to Boston. The plan by his doctor in Boston is to open Steven’s belly with an exploratory laparotomy to see what he has left and what had been done in China. They will then take down his colostomy and put in an ileostomy to give his bowels a true rest. They will remove the port in his chest that is no longer working, and try to remove adhesions throughout his stomach from multiple surgeries.
Steven has been through so much in less than a month of being with us. He is a miracle, and we know that God's timing is perfect.
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